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Welcome

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Every child deserves the best future possible

Welcome to the our website. The Wolf-Hirschhorn Syndrome Trust (WHST) is a registered charity and was formed in 1994 by a group of parents. It’s aims are to support everyone affected by WHS and to promote awareness and understanding of this rare genetic disorder.

Help For Families

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Research Requests

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Fund Raising

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Local & National Meetings

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What is Wolf-Hirschhorn Syndrome?

Wolf-Hirschhorn Syndrome (WHS) is a rare genetic condition that occurs when a small part of chromosome 4 is missing (deleted). It is thought to affect 1 in 50,000 births.

The most common features associated with WHS are:
– learning difficulties
– seizures
– characteristic facial appearance
– delayed growth
– developmental delay

What we focus on

Our Programs

Fight Poverty
Programs & Services

Provides nutritious food, wholesome food, funds, and vocational training to people suffering from lack of it.

Family & Community
Programs

Support to families, children, young people, volunteers, refugees, migrants and other individuals with special circumstances.

Teen
Programs

Keep children getting a good education, including tutoring programs, scholarships, learning spaces, computer training.
We need your help.

Featured Campaigns

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Volunteer Positions Available

4.89M

Staff and volunteers across 16 countries

68K

Of our staff in these countries are local

82%

Invested in all our programs last year 2019

136M

Invested in all our programs last year 2019

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Make an Impact All Year Long

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Meet The Team

Committee Members

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Become a volunteer

Join your hand with us for a better life and beautiful future.

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    Committed to Transparency

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    Do you have questions? Call or visit us.

    07917 334407
    1 Hawthorne Villas Holmes Chapel Crewe
    CW4 7AR
    United Kingdom

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    United Kingdom & Ireland Charity No. 1038219